Kicking AML’s Ass: Counts recovery

Posted by @ 1:56 pm on Tuesday 26th January, 2016.

Well, I stayed at the crease for long enough to save the match. If you were in the crowd then I'm raising my bat to you, your support is much appreciated.

The fungal infection never revealed itself despite being hunted via x-ray, CT scan and then bronchoscopy. Maybe we scared it away?

My neutrophil count stayed at zero for a few days and then on Jan 21st I had an inexplicable feeling that something had changed for the better. I mentioned it to the consultant during rounds, he was kind but sceptical. Nevertheless, a few minutes later he was back, telling me that my neutrophils had indeed gone up from 0.00 to 0.12 - that was good enough for me. The next day it was still at 0.11, so still looking OK.

The next day there was no value for the count, so when the consultants did their ward-round I asked for the reason why. Apparently at the weekend the bloods are subject to a different team/process which doesn't give a neutrophil value. I said that I was tracking my progress and was disappointed at not having a count, but the lead consultant haematologist rebuffed me with something dismissive, something like "0.11? It's just a blip. If your counts are really rising after such a short period, you'll be the first person we've ever had who has started to recover so soon. You'll need another week for the counts to start to recover for real." I wasn't overjoyed - she wasn't very inspiring, and I told her so before she went. I also told her that I thought she was wrong, I could feel that I was getting better.

Sunday went by with no count and no problems.

Monday, however, was a peach. A different consultant was at the desk when I asked the nurse for my neutrophil count.

0.31

I asked the nurse to repeat it louder, as if I was having trouble hearing.

0.31!

Nobody dared to stop me celebrating (wandering the ward supping a pint bottle of Magners).

And the counts have continued to rise every day  🙂

For some strange reason, the disparaging lead consultant hasn't seen me since.

 

This post has been backdated from 2nd Feb.

One Response to “Kicking AML’s Ass: Counts recovery”

  1. AlanR says:

    We couldn’t be more pleased. What a result. Brill. I hope the consultant got a sip of the Magners and smiled.
    Try a bottle of Sir Joseph Holts finest Two Hoots, i have it on good authority it cures everything.

Have your say - submit a comment

THE SMALL(ish) PRINT... (updated 23/07/2016)

By submitting a comment to this blog you grant me permission to reproduce its content and to reproduce the submitted name/URL in attribution. I will leave your content in its intended place and in its unedited form unless one or more of the following apply:

If you ask me to modify, move or delete your content, I’ll consider making the requested change(s) so long as there’s no significant alteration of the context of the content or of any debate associated with it;
If you change your email address or URL, I’ll update these details in older comments so that I'm not displaying dead links;
If I decide to change the theme or layout of this blog, thus affecting the placement and/or visibility of comments, I’ll make whatever changes I see fit for the smooth running of this blog;
If any comment contains insulting profanity or other content which I deem to be causing or likely to cause trouble, I’ll edit or delete as I see fit for the smooth running of this blog. I’ll try to remember to display the reason(s) for whatever editing I do, so that folk aren’t left hanging wondering what happened and why. If you can at least try to "disguise" your swearing, it would be much appreciated.

Other things to consider:

Comments must contain at least 3 characters;
You can use some code in comments, feel free to give it a shot and see what works;
If adding pics, the recommended maximum dimension is 600px.;
Comments containing many links will be held for moderation;
I reserve the right to amend this policy in line with proven applicable current legislation;
Free Speech: you may well have the right to it, but you've no right to compel me to a) listen to it, or b) publish it!