T+114 today and I was back at LRI for a haematology consultation and a fourth and final dose of IV Rituximab. During Wednesday's cardiology consultation at Glenfield Hospital I was told that my lack of get-up-and-go was due to me being anaemic, but today the LRI doc told me that I'm not. Today's Hb level was 109 g/L, and normal is 130-180 g/L, so go figure.
Platelets and WCC are both the highest they've been since 2015, and neutrophils are holding steady in the middle of the normal range, so that's all good. Serum ferritin, however, is at an all-time high, so high that I've had to extend the y-axis on the charts. The most recent test has the level at a whopping 4201 × 10-6 g/L (normal is 15–350 × 10-6 g/L, preferred is 50–200 × 10-6 g/L) but they say that I can't start venesections to reduce the level until next year which means living with the effects for a while yet.
The Glandular Fever has resolved, so they've decided that I won't need those incredibly-expensive Epstein-Barr Virus (EBV) Specific Cytotoxic T-Cells after all.
You'll have to excuse me now - I need to get back to the feeding regime... I need to take in at least 2000 calories a day just to maintain my reduced body-weight, and they'd like me to up that to at least 2200 a day to help me to regain 15kg of the 30kg that I've lost since the start of the year. I seem to spend most of my waking hours scoffing or crapping. I'm not short of suitable food and drink but having an appetite and functional taste-buds would help.
THE SMALL(ish) PRINT... (updated 23/07/2016)
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