I had to attend for another blood-test on Tuesday 11/12/2018, and I got the results by phone today. Nothing is in-limit. Hb, WCC and neutrophils have all fallen significantly. Serum ferritin is now way over top limit at 862 with no explanation. The nerdy counts charts have been updated.
The consultants still aren't sure what's going on, but they were happy to continue with their plan, which would leave me hanging for another three weeks. Then I mentioned a couple of things that they'd not factored into their scheme...
First up is a problem that's reared its ugly head only recently... palpitations, specifically atrial flutter. It started a couple of weeks ago, once a day, but over last few days it's been a couple of times per hour. It's how the heart copes when there's not enough Hb in the mix. I had it before, when I was an in-patient undergoing chemo cycles 1 and 2.
Then there's the farce that was the "urgent blood test" that I requested at my GP surgery on Monday 03/12/2018 because I'd been feeling crap for a week or so. They took the samples on Tuesday 04/12/2018, the Walsgrave performed the tests that day, and true to the NHS' definition of "urgent" I was still waiting for the results to be released to me late on Friday. Their results are similarly bad but they don't match the trend of the LRI results, which is a bit of a worry. I decided to omit those results from the nerdy charts.
The consultants are going to revisit their plan, and I am to expect another call from the LRI sometime this Friday morning. I've placed my bet on being invited to another Bone Marrow Aspiration with Trephine, Chris has placed her bet on courses of antivirals and antibiotics. I think we'll both be right.
THE SMALL(ish) PRINT... (updated 23/07/2016)
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