Perplexed

Posted by @ 10:02 pm on Thursday 22nd November, 2018.
Categories: Health, or lack thereof, Video (YouTube, Vimeo etc.)
Tags: ,

Another blood-test and consultation today. The results were a bit of a mixed bag... platelets, WCC and neutrophils have all risen a tad but remain well below bottom-limit. Hb has dropped again and is now slightly below bottom-limit. They didn't give me a result for serum ferritin but from the way I feel I suspect that it has risen again. The nerdy counts charts have been updated.

The consultants aren't sure what's going on. The previous three times I was there I've been told that it might be t-MDS (therapy-associated myelodysplastic syndrome), then that t-MDS had been diagnosed, then that I have t-MDS. Now I'm told that I have neither t-MDS nor relapsing AML. In short, they know what it isn't, but they don't know what it is.

I was told that I am now over their two-year hurdle so it's likely I'll make five. I beg to differ - I feel like I'm stuck with one leg either side and my nuts squashed against the woodwork.

I may ask for a second opinion from someone who claims to know about what's known and what's not:

We're in "watch & wait" territory. Another blood-test three weeks hence, then a blood-test and consultation three weeks after that.

 

If there's one lesson to be learned, it's this:

When I get concerned about a result that's much worse than the trend, I'm told that it's a blip because it's out-of-context...

But when they triumphantly announce a result that's ever-so-slightly better than the trend, I'm told that it's a sign of recovery even though it's out-of-context.

Have your say - submit a comment

THE SMALL(ish) PRINT... (updated 23/07/2016)

By submitting a comment to this blog you grant me permission to reproduce its content and to reproduce the submitted name/URL in attribution. I will leave your content in its intended place and in its unedited form unless one or more of the following apply:

If you ask me to modify, move or delete your content, I’ll consider making the requested change(s) so long as there’s no significant alteration of the context of the content or of any debate associated with it;
If you change your email address or URL, I’ll update these details in older comments so that I'm not displaying dead links;
If I decide to change the theme or layout of this blog, thus affecting the placement and/or visibility of comments, I’ll make whatever changes I see fit for the smooth running of this blog;
If any comment contains insulting profanity or other content which I deem to be causing or likely to cause trouble, I’ll edit or delete as I see fit for the smooth running of this blog. I’ll try to remember to display the reason(s) for whatever editing I do, so that folk aren’t left hanging wondering what happened and why. If you can at least try to "disguise" your swearing, it would be much appreciated.

Other things to consider:

Comments must contain at least 3 characters;
You can use some code in comments, feel free to give it a shot and see what works;
If adding pics, the recommended maximum dimension is 600px.;
Comments containing many links will be held for moderation;
I reserve the right to amend this policy in line with proven applicable current legislation;
Free Speech: you may well have the right to it, but you've no right to compel me to a) listen to it, or b) publish it!
« Previous/Earlier Post «
» Next/Later Post »