Archive for the 'A bit of a rant' Category

CHURNed

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Yet again we see the Beeb playing all the right notes, but not necessarily in the right order...

 

Let's look at the details...

The United Nations Human Right Council (on line 2) is a fiction, it should be the United Nations Human Rights Council.

The correct initialism for the United Nations Human Rights Council is UNHRC, not UNHCR.

The UNHCR is a different UN organisation, it's the United Nations High Commissioner for Refugees.

CHURN is what the Beeb does to initialisms.

The Magic Word works again… sort of

Posted by on March 31st 2022 in A bit of a rant, Health, or lack thereof, Name and Shame

Now lets move on to the painful/tender left breast issue...

It became troublesome early last year, and on 5th February 2021 I reported it to the LRI haematology team because I have to report all new or changed lumps, bumps, rashes etc. in case they're either secondary cancers or manifestations of GvHD. They thought that it was probably benign gynaecomastia but to be on the safe side they set me up for a CT scan with contrast.

That scan was done on 4th March 2021 but the scanner-jockey wouldn't use contrast despite me saying that I'd been told that it was necessary to have it.

At haemo clinic on 10th March 2021 the scan results were discussed... "nothing found, but specific area not specifically looked at", which seemed a waste of time to me and to the Haematology Consultant. She said that it was likely that the scan will have to be done again at a time when a haemo doc could be in attendance to ensure that contrast is given. She also said that I may also get an ultrasound scan.

At haemo clinic on 24th March 2021 the matter was discussed again... further scans had not been arranged, but they would "get the Breast Specialist involved".

At haemo clinic on 9th April 2021 the matter was discussed yet again... further scans still not arranged, and Breast Specialist not yet involved. The haemo consultant said that he'd chase it up.

And that was pretty much the end of it for the rest of 2021. No scans, no specialist, no suggested treatment but plenty of tender/painful swelling.

By the start of 2022 I'd had enough of having to put up and shut up. It was time to rattle a few cages.

The Magic Word, used at the haemo clinic of 9th March 2022 to get the shoulder issue kick-started, also worked for this issue - within days I was holding an appointment letter telling me to attend the Department of Breast Surgery at Glenfield Hospital on 21st March!

Sadly, the Consultant Oncoplastic Breast Surgeon there was another "wants to talk but not listen" doctor. He confirmed benign gynaecomastia and told me to apply Ibuprofen, I replied that I had been on the maximum dose of oral Ibuprofen for other issues for over a year and had been told to not increase my Ibuprofen use in any way, but he ignored that. Sounds familiar, eh? I specifically told him that the report from the consultation must go to the haemo consultants at LRI, as it was them that raised the referral.

Five days later my copy of the clinic letter arrived. It's riddled with errors. It states that I've been reporting "painful lumpiness... for the last few weeks", rather than for over a year. It completely omits the instruction to apply Ibuprofen, and also omits any other suggestions for managing the condition. And just for good measure, he sent the letter to my GP (who was blissfully unaware of this issue) but didn't send it to the LRI haemo consultants despite my telling him to do so. Finally, the letter ends with "The patient was reassured and discharged"... that's cop-out bull-shit, I was not reassured then, and I'm sure as hell not reassured now.

Based on all available evidence, I have diagnosed his condition as "HITS" (Holier-than-thou Ignorant Twat Syndrome).

As you'd expect, I've been on the phone yesterday and today giving them appropriate doses of corrective grief. In fact, I've spent more time sorting their fuck-ups than I spent being fondled and scanned by the breast surgeon.

It looks like there are limits to how much good can be achieved by using the Magic Word.

My expert trumps your pair of quacks

Posted by on March 30th 2022 in A bit of a rant, Health, or lack thereof, Name and Shame

Back on 3rd March I was rudely awakened by one of the GP's docs flying a desk at my local surgery. I'd had a face-to-face appointment booked for 12:30 to try to get some treatment regarding the "rotator-cuff injury" that first became an issue in February 2021, but Dr. K. S. fucked up - for some bizarre reason the £millions spent on his professional training/salary counted for nothing when he woke me up at stupid o'clock in the morning, claiming that I'd arranged a telephone consultation. After I'd torn him a new one he said to attend at 12:30, but he called again at stupid o'clock + 15 minutes, asking for me to attend at 11:00.

Some people just don't know when to back off, and this doc was one of those people. He'd set himself up for what happened later...

Well, I attended at 11:00, he told me again that scans performed on 16th September 2021 had shown a small tendon tear, and that physiotherapy was the way to go. I was given a different set of "physio exercises" that I clearly couldn't do due to the restricted range of movement of my right shoulder, and was told again that I wouldn't get any more steroid injections. He told me to take more Ibuprofen, I replied that I had been on the maximum dose of it for over a year but he ignored that... he wanted to talk but not listen, and so set himself up for some grief...

I asked for the manager.

The deputy manager kindly made time for me, so I politely gave her a full salvo - inaction regarding the shoulder, no chance of any more steroid injections for it, paracetamol (for treating GvHD) taken off repeat, ibuprofen (for shoulder pain) repeat declined, other repeats changed unilaterally without consulting those who had initiated them, the world shortage of xyloproct, Dr. V.B.'s mangling of my SystmOnline records and repeats, and the 5th-Covid-jab debacle.

She tried her best, but hardly anything got changed or corrected, so six days later I had a word with the haemo team at LRI, as the original referral was raised by them last year. The word that I had with them was "comorbidity".

Well, I reckon that must have been the Magic Word*** - within days I received a phone call from the orthopaedic department, swiftly followed by a letter detailing an appointment with an expert - an orthopaedic consultant.

I went to see her on Monday this week, and it was a revelation...

She told me that x-rays taken way back on 8th June 2021 had revealed bony growth restricting the tendon, which may well have been the cause of the tear. Nobody had discussed that with me before. She said that physiotherapy was a complete waste of time and effort, the only fix would be surgery to remove the bony growth. Until that happens, I should continue with fitness exercises to preserve some arm-muscle/mobility. I'm to get an appointment with the surgeon within a few weeks, allegedly.

Turns out that I was right to question whether "ALJABI, Yasser (Mr), Post-CCT Foot and Ankle Fellow" was the right person for shoulder jobs, that was back in December 2021:

*** That Magic Word worked wonders - it also jump-started a different "stalled" issue that I'll cover in a separate post.

You wait… and you wait… and then you go ape-shit

Posted by on March 28th 2022 in A bit of a rant, Health, or lack thereof, Name and Shame

More on that MaxFax saga...

I called the UHL Fooking Office today, regarding that pair of appointments:

 

 

 

The phone-jockey said that the appointment for 29th March had been cancelled on the 24th... the same day that the 31st March appointment was generated.

Clearly they must think that I'm psychic, as the second letter doesn't say anything about any cancellation or postponement.

Then the phone-jockey claimed that on 24th March they sent out a separate letter regarding the cancellation. Now, I'd have thought that it would have been in the same postal run as the new appointment, and would have arrived here on Saturday 26th. Indeed, any sane person would have detailed the cancellation in the second appointment letter... or would have put both letters in the one envelope. But no, common-sense did not prevail.

So far I've seen neither hide nor hair of said cancellation letter, so I reckon I've been fed yet another helping of admin cop-out bullshit.

As I said, there really is no foreseeable end to the sorry tale of UHL Booking Office's ineptitude.

And yes, I understand that their "no tolerance anti-abuse policy" covers telephone conversations...

but I've got news for them...

I have a similar policy, mine covers abuse of my patience, and includes an anti-bullshit clause.

You wait… and you wait… and you wait…

Posted by on March 26th 2022 in A bit of a rant, Health, or lack thereof, Name and Shame

The MaxFax saga goes on...

After way over a year of both my GDP and MaxFax leaving my LR7 to rot in place rather than treat it, MaxFax got around to extracting it on Sunday 6th February. The locum dental consultant did an epic job with inadequate (paediatric) dental tools, having to resort to drill, scalpel and brute force to remove about 20 bits of shattered molar roots, and putting in half a dozen stitches to close the wound. I was given antibiotics sufficient for five days, and sent home. In typical fashion, the letter from that clinic eschews the facts and states that the job was done on a Saturday, presumably meaning on the 5th February. Ho hum, no great shakes.

But that clinic letter also states that they would review me in "three to four weeks' time", so that would have been any day from Saturday 26th February to Sunday 6th March inclusive, right?

Wrong.

UHL Booking Office ignored the principles of the Gregorian Calendar that the rest of the western world has been using for nearly half a millennium, and decided that "three to four weeks' time" would mean Tuesday 22nd February. Four to twelve days too early, that calculation depending on more factors than I've got teeth.

At that review it was clear that the first lot of antibiotics hadn't prevented infection, so I left with a second course of them, and with the requirement for another review "in two weeks' time" to see if the infection had been cleared. So that would have been Tuesday 8th March, right?

Wrong again.

Try Tuesday 29th March. Exactly three weeks late:

 

 

Well, we have to take what we can get, so when the reminder text arrived on Tuesday 22nd March, I duly confirmed that I would attend:

 

 

All sorted, right?

Wrong yet again.

This arrived this morning:

 

 

Clearly it doesn't say that the Tuesday 29th clinic is cancelled or postponed, so I have to assume that it's a bona fide appointment for me to attend on Thursday 31st March.

As it stands, I need to attend twice in three days to have two different people look at the battle-scars from one extraction. It's utterly nonsensical.

There really is no foreseeable end to the sorry tale of UHL Booking Office's ineptitude.

Crew expendable

Posted by on February 21st 2022 in A bit of a rant, COVID-19, Health, or lack thereof
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Let's just take a minute to think about how this is going to work...

A few months ago the NHS kindly sent me a single PCR Home Testing Kit, because I'm "At Higher Risk".

The idea is that if any of my regular LFTs return a positive result, I then take the Home PCR test ASAP and send the sample to the lab ASAP via either a courier or the Priority Post system. If that test returns a positive result as well, I get a call to hot-foot it to hospital to get drugged up again. The sooner the meds are in, the more effective they'll be. Five days is the limit, after that they'll be of no use to me whatsoever. On the menu are Dexamethasone, Sotrovimab, Paxlovid and Molnupiravir, and if they want me to have another vaccine jab I'm going to push for Novavax because 2xAZ + 3xPfiz won't have worked.

But... if I don't have any LFT kits here because they'll only be issued when I'm symptomatic, how the Hell will I know when to deploy the Home PCR kit?

If it takes a day to get LFT kits, and another day to get the Home PCR sample to the lab, and another day to process it and let me know the result, that's three of my five days wasted, and that's not even factoring-in any weekend interference.

No, it's not going to work.