Tuesday 5th January, 2016

Kicking AML’s Ass: Squint – squit – quit

Posted by at 12:16 pm in Health, or lack thereof.

They all say that I am reacting well to the treatment and that my blood-counts are on the up, so that's good news.

The not-so-good news is that for some reason I have developed a selective photophobia. I've had a similar thing a few times before when accidentally exposed to welding glare, in the trade we called it arc-eye, the proper term is Photokeratitis and that is due to exposure to strong UV emissions. Anyone who has ever had it will know just how excruciating it can be.

This time, however, it's different. I'm fine with most light sources, but the strip-lights in the ward corridors and rooms are driving me crazy. The Wikipedia page for photophobia lists chemotherapy as a cause, and the docs are going to get an Ophthalmologist to take a peek at my mince-pies. I thought that their interim advice for me to "keep an eye on things to see if they get worse" was a tad droll.

Oh, and the combination of high-sugar, high-carb, high-protein drinks, antibiotics and a new dietary regime (at odds with the diet recommended by the cardio peeps) has given me the raging trots. I tell you, I could shit through the eye of a needle!

So you can imagine the scene... a temporarily blinded man racing down an obstacle-filled over-lit corridor to get to the over-lit toilets...

Some you win, some you lose  🙁

Can you tell that the prescribed NiQuitin Step 2 nicotine patches aren't quite cutting the mustard? Still, they are better than nothing - I had to wait 3 or 4 days for the first lot of patches, and when they arrived they were Step 3 when I really should have been started on Step 1. I'm down to 2 ciggies a day, I think that's a major reduction and I feel quite triumphant. Others have their own opinions, but generally they have never smoked and don't understand how difficult it is to kick a 30+ year habit in such a short period of time.

I would like to give up completely, but the boredom here now, and the prospect of another 4 weeks of it, are not exactly conducive to a measured, managed and controlled withdrawal from the ubiquitous South American herbal remedy. Oddly, the staff here consider e-cigs to be a total no-no due to the lack of scientific evidence of their safety, despite the lack of tar and particulates found in "proper" smoke.

Apart from that, I'm fine. Honest!

Sunday 3rd January, 2016

Kicking AML’s Ass: Phase 1 complete

Posted by at 12:50 pm in Health, or lack thereof.

Woohoo! - they've finished poisoning me!

This morning I had my final dose of chemo for Cycle 1. For the next four weeks I will be playing the waiting game while my system attempts to reboot. Hopefully there will be no BSOD - the odds are in my favour at about 80:20 (some sources say 85:15).

For those who are interested, I've been on a "3 & 10" chemo regime. That means 3 days of Daunorubicin (days 1, 3 & 5) combined with 10 days of Cytarabine (days 1-10), all given IV up a PICC Line. The Daunorubicin was an hour per bag, looked like Irn Bru and made my piss the same colour, which was a tad disconcerting at first. It also made me nauseous the next day. The Cytarabine was a syringe job taking only a few minutes, it was clear stuff which stank. I had a persistent slow nosebleed which meant that some Cytarabine leaked into my sinuses and throat when they administered it, the smell of it was slowly sending me around the bend. It also gave me a lovely chemical burn down the throat.

Anyway, the nosebleed has stopped because they gave me a platelet transfusion last night. And I will get a haemoglobin transfusion later today which will perk me up a bit.

per ardua ad alta, as they say at my alma mater.

Tuesday 29th December, 2015

Catch-up #3

Posted by at 9:42 pm in Health, or lack thereof, Rambling on....

When Santa asked me what I wanted for Christmas this year, I said that I'd like some Turkish Delight and that would be enough.

Well, I got the Turkish Delight, but I wasn't expecting to be sitting in hospital scoffing it while being pumped full of chemo drugs on Christmas Eve.

Acute Myeloid Leukaemia (AML) Type FAB M2.

Bugger.

Sunday 27th December, 2015

Catch-up #2

Posted by at 10:08 pm in Rambling on....

This post should cover most of 2015. You'll have to excuse the lack of photos, I don't have them with me right now so I'll see about adding them when I can.

We eventually got away to the Lakes for a well-earned breather. A weekend in Patterdale just before Easter. We were both surprised by how well I coped on the fells, knocking off a couple of the lower Wainwrights (Longlands Fell and Brae Fell) was a doddle when the walking was properly paced. Only three more to do! We also nipped up to see the recently deconstructed Hayeswater dam area, it'll take some time for nature to reclaim what it had lost, but it was looking good.

Summer hols saw us back at Ty Llewelyn, and pottering about the mountains and the coast. Me and Chris went up Tryfan via the Heather Terrace, and it was a major triumph for her. She's tried before but had to stop just a few tens of feet of alt from the top due to health issues, this time she went all the way. I didn't top-out, I'd done that three times before and considered the possibility of a fall from the "bad corner" to be too great. I'm good with mountains but I'm shite with unsupported exposure to Sir Isaac's greatest discovery. We also pottered around on Moel Siabod... again. Top mountain, best there is.

Ella did better than she thought at uni and went on to start her second year on a high, and Anna got a great set of GCSE results and started what is now compulsory 16-18 education doing a bunch of A-levels at the local Sixth Form college.

After a few mini-extensions, my contractor job at TNT BICC came to an end in September, when all of their work was subbed out to an Indian company. Of the TNT "permies" a few were mapped to different positions but the majority were made redundant. That was a sad day for everyone there. They all had "TNT" running through them like "Blackpool" through a stick of seaside rock, it was a tragic waste of talent.

Our Bonfire Party was exceptionally "in yer face" - plenty of guests, lashings of hot food (courtesy of Chris), and a major surprise - my pyromaniac nephew Luke turned up with his car full of HUGE fireworks from http://www.ghengisfireworks.co.uk/ , we reckon he must have spent about £500 on them. The ground and the windows were really shaken that night!

I've probably missed a bunch of other notable things, but that brings us more-or-less up to date.

One more post should do it.

Saturday 26th December, 2015

Catch-up #1

Posted by at 9:36 pm in Rambling on....

2014... unexpected things happened between August and the end of December...

First up, in September I landed myself a job. To be fair, it was handed to me on a plate - a full-time 3-month contractor position in the TNT BICC in Ashby, where Chris works. Simple stuff really - processing requests for users wanting access to BI reporting systems, sending them their access credentials, and being the unofficial Office Joker. So, nothing new there 🙂

The next good thing was that I was given the all-clear and final discharge from the Glenfield Cardio Unit. Statins and mini-aspirins daily forever, and that was all.

By way of a celebration, me and Chris booked a November weekend away at Patterdale YHA, with the intent of bagging a few of the Wainwrights still on my to-do list. What we didn't foresee was that Rab, my trusty Octavia vRS, would suffer catastrophic and terminal oil-system failure while we were on the way there, so the weekend was abandoned, we were rescued from the dual-carriageway by the Police, and the car expired in a mess of mangled piston-rings and fried shell-bearings. R.I.P., Rab, you are sorely missed. The Kia Cee'd SW7 that I bought to replace you will never measure up.

The next good thing was corrective butt-surgery, at long last they performed the minor surgery needed to repair the damage caused by the original piles operation back in 2012.

So, November wasn't too bad after all, and December was even better - TNT extended my contract by six months, which provided a little more financial security.

More soon.

Ol’ Blue Eyes Is Back

Posted by at 10:02 am in Rambling on....

Well, ooda thunkit?

Just when I thought it was safe to consider this blog a write-off, I found a new... "hobby".

I'll tell you more about that after one or two catch-up posts - there's a fair chunk missing between Aug 2014 and Dec 2015.