Archive for the 'Health, or lack thereof' Category

Wintalympix1

Posted by on January 10th 2019 in Health, or lack thereof, Just for fun

Go on, tell me, who wouldn't want to tackle this slalom course on a tea-trolley?

Radio silence

Posted by on January 9th 2019 in Health, or lack thereof

Apologies for the lack of recent updates - I didn't want to be posting through the fog of chemo.

The first cycle of poisoning is now over, and we're waiting for the blood-counts to bottom-out so that we can see how they recover. My head's a bit clearer now, so I'll keep you posted more often.

Tea for two?

Posted by on January 4th 2019 in Health, or lack thereof, New tricks for an old dog

They didn't have this level of service when I was in here before. Every Friday, Ward 41 gets cakes on plates and tea in china.

So, if you're considering a visit, you know which day's best.

Frequent-flyer privilege

Posted by on January 3rd 2019 in Health, or lack thereof

All good so far. One dose each of GCSF and Dalteparin, both subcuts in the belly. Chemo starts this afternoon.

Got me a new club-card:

Delete cookies and cache, then reboot

Posted by on December 27th 2018 in Health, or lack thereof

Relapse confirmed.

They've made up their minds and are now in accord with each other - we're going for the FLAG-IDA regime, which means I'll be resident on LRI Ward 41 again. Kick-off will be at 14:00 on 02/01/2019.

And I'll need a stem-cell transplant if a suitable willing donor can be found.

Thanks to Chris and to Santa, I have reading material to tide me over the first few days:

Today’s change of plan

Posted by on December 19th 2018 in Health, or lack thereof

Fifth Bone Marrow Aspiration with Trephine... the preliminary results are in. My blast-count (immature blood-cells) count is too high. 12%. Treatment opinions are divided.

One consultant favours treatment with Azacitidine, during which I would be an outpatient. It wasn't stated, but I'm guessing that I'd have to attend Day Ward for each subcut dose.

Another consultant favours the FLAG-IDA regime, which would mean being resident on Ward 41 again.

They won't be able to decide until they have the full results of the cytogenetic test.

I've been told that both options lead to me needing a stem-cell transplant if a suitable willing donor can be found. But here's a thing - if you follow the Azacitidine link above, it states "Azacitidine is used when treatment with a stem cell transplant is not suitable."

Hmm...

As before, no meds to tide me over Christmas, but the next consultation has been brought forward to 27/12/2018. Whether the full results of the cytogenetic test will be available by then is moot - the full test takes several days.

So that's the family's Christmas holidays well and truly fcuked.