Remember when I said that my GP surgery couldn't file my flu jab of 12th September?
"Unable to automatically file a third-party immunisation message (Y2f39)".
Well...
I can't reply to "NHSvaccine", so I can't put them straight. TMP, as we say around here.
My GP surgery is calling people for Covid autumn booster jabs, coupled with flu jabs. The surgery's website displays the following info:
Let's analyse that...
People in the over-75 age group can get jabbed from 1st October onwards.
People in the 50-64 age group can get jabbed from 16th October onwards, but the first clinic for them will be on 22nd October.
When people in the 65-74 age group can get jabbed is anyone's guess.
Regardless, we weren't going to wait over a month for our Covid jabs, so I contacted the nearest NHS walk-in site. As I'm still classed as being "at higher risk" I was allowed to make a traditional appointment, but Chris and Anna had to attend as walk-ins. While we were waiting, I noticed that they were also giving flu jabs so, when our turns came, me and Chris got both jabs. Although Anna also qualified for a free flu jab, as she's living with an "at higher risk" person (me), we couldn't convince the officials of that qualification, so she had only the Covid jab. All that took place on 12th September.
And true to form, "The System" has cocked-up my record again. In a minor error, SystmOnline has my Covid jab logged as having been given on the 13th. More worrying is another entry dated 13th September, presumably for the flu jab, which states:
"Unable to automatically file a third-party immunisation message (Y2f39)".
I contacted the GP surgery to clarify the situation, and apparently, even though I don't work for the GP, or for the NHS walk-in site, or indeed for any other part of the NHS, it's up to ME to run around getting this sorted out!
That's not going to happen. I'm not fixing their fuck-ups. They can get stuffed.
I'd looked after my Pre-Registered Government Issue NHS Home PCR Test Kit for many months, hoping that I'd never have to use it, but knowing that I probably would, and believing that the NHS had my back, offering treatments to people infected with Covid who are at higher risk of becoming seriously ill. Those treatments are often referred to as the "Wonder Drugs", for obvious reasons. They are:
So, after submitting the result of my positive LFT on Saturday, I dragged the PCR kit out of safe storage.
That kit is to be used in specific circumstances, for specific reasons... I have a stack of sets of instructions for the use of that kit, the stack is about an inch thick, and, just for once, each set says the same thing. The plan is fairly basic so that it can be executed within 48 hours:
submit positive LFT result online > send pre-paid priority-post PCR test > await hospital contact > get either pills in the post, or a drip at a hospital
The initial response to my LFT result online submission was a wave of incoming texts and emails saying that I should stay safe at home, wait to be contacted within 24 hours, and I was to have all sorts of information to hand. There was no mention of the PCR test, which I thought was a bit odd.
The call came after a nervy 18 hours, from a triage phone-jockey, not a doctor. She confirmed my identity, ran through a scripted list of questions which had nothing to do with the info that I'd been told to have to hand, and said that I would be contacted by a doctor WITHIN SEVEN DAYS OF THE POSITIVE TEST. I queried that, as the meds that I'd been told I'd need should be given ASAP, mostly within FIVE DAYS of being infected, some needed to be in a lot sooner than that to be most effective. The response was that the doctor would make that decision. I was asked if I drive (yes, I do), but not if I could drive (no, I couldn't), the reason for the question being that I would probably have to go to a special unit in Glenfield Hospital car-park for my treatment. I wasn't asked if there's anyone else living here who is infected (yes, there is), and no further advice was given. Again, there was no mention of the PCR test.
It was shocking. And worrying, implying up to a week of waiting for a doctor to contact with me, when time was of the essence.
Eventually a doctor called me. He asked for my current meds list and questioned why I was taking each item... if he knew anything about SCT patients, he'd have known the answers. I'm not sure that he had access to my medical history, as he seemed to be working off the most-recent clinic letter from Haematology. I had to tell him the date of my AML diagnosis, the date of my SCT, and roughly when my immuno-suppression and chemotherapy treatments finished. He wasn't interested in GvHD episodes. Yet again, there was no mention of the PCR test.
Then came the kicker... he said that I didn't qualify for the "Wonder Drug" treatments, I was to follow the standard advice for those with Covid, and then he was off the phone and gone like a rat up an aqueduct.
I was gob-smacked.
I was on the blower to the transplant clinic staff as soon as they could spare some time for me. They too were surprised. Their advice had always been that if I was to contract Covid I'd need one of those wonder-drugs, and that advice from them hadn't changed. They said that I should submit the PCR test ASAP, I said that there was no point if I didn't qualify, so I'd binned/recycled it. I think that they got the point - they went off in search of the truth. They soon found it, and it wasn't what they were expecting to find...
The qualification criteria had been changed by the UK Chief Medical Officers, based on advice from an independent advisory group of health experts commissioned by the Department of Health and Social Care (DHSC). Source.
I'd not been told. The transplant clinic staff hadn't been told. There's not one person I know who had been told.
So here's the rub:
The transplant clinic docs know me inside-and-out (literally), they categorise me as "at higher risk" of contracting pretty-much anything and everything, and they say that's never going to change, as my immune system will always be sub-standard and vulnerable. They will never discharge me. It's like "Hotel California" with added needles and poisons.
But the Covid docs say that this century's greatest viral threat to human health is now no longer a sufficiently-high risk to me to merit the treatments that I would have received at the drop of a hat if I'd caught Covid two weeks earlier.
Same me, same Covid variant, different goal-post placement, so the risk to me has effectively increased due to the withholding of treatment.
Go figure.
Stayed safe for two-and-a-half years. Sod it.
Just for good measure, Chris tested positive the same day.
Looks like it's falling apart at the seams, just as the infection-rate is on the up.
Ho hum...
Sometimes I think that they do it just to get attention...
I attended Hambleton Suite clinic on 19th May for my Annual Review... full bloods, virology, Covid vaccine antibody response, height, weight, full valet, replace the wiper blades... you know the drill. Preliminary indications implied that all was well, so I left with an appointment to ATTEND on 9th June, when the full set of test results would be reviewed and discussed. Said appointment was written on my card and in their appointment book, and later on someone added the appointment to "the system".
But a week later I was feeling rough, so I called it in and they asked me to attend for a quick check-up. Nothing bad was found in the bloods, they said that I'd probably got some sort of minor virus infection, nothing more. They took the opportunity to run through the Annual Review test results, meaning that there was no longer any need for me to attend on 9th June, so that appointment was cancelled and another made for 6th July.
So far, so good. But then someone managed to cock it up...
On 2nd June I got a surprise text reminder from 07786 209254 (one of their system's text-based reminder services) for a TELEPHONE appointment... for the same time and day as the cancelled ATTEND appointment. As you can see, it took all of five minutes for me to cancel the already-cancelled appointment and for that to be both confirmed and spiced-up with a threat of discharge:
From that, you'd think that everything was back on track, but you'd be wrong.
On 7th June I received another text reminder, this time from NHS UHL (another one of their system's text-based reminder services), for the very same appointment that I'd re-cancelled only five days before via the other text service. NHS UHL texts don't permit replies, so I can't put them right:
It's yet another example of their dis-integrated system.
It's not often that I give up, but I have (arguably) better things to do than try to fix the unfixable.
I didn't bother with the re-cancelled appointment, and much to my disappointment they didn't carry out their threat to discharge me.
